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My Own Navigation & Waze for Bathrooms

May 14, 2018 by kmdg-admin

We know where every bathroom is in the Orlando area and have likely visited the majority of them. I could be a data source for Waze on how to locate the closest bathroom up and down the I4 corridor.  I know banks, convenience stores, restaurants, retailers, office buildings and which...
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Clothing Choices

May 10, 2018 by Admin

The fashionista in you does not need to change just because you were diagnosed with IBD, although you might need to work a little harder to find the outfit that works best for you or as your weight fluctuates with the disease you might need to buy a few new...
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Food Choices – Diet Is Important

December 21, 2017 by Admin

It is important to make good food choices for your digestive system.  We would recommend that you keep a food diary, so that you know what foods you tolerate well and the ones that you don’t.  We never had a specific food that would cause a flare; however, based on...
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Exercising – Staying strong and fit!

December 06, 2017 by Admin

Both Jill and I have been active our entire lives. We were athletes when we were kids and still consider ourselves to be active with a desire and want to be outdoors, playing sports and participating in recreational activities. There are times when the disease has limited our options to...
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Jamie on the KazCM Podcast

December 05, 2017 by Admin

EP022: Perspectives of a Life Settlement Specialist with Jamie Mendelsohn Life settlements and life causes. Eric Kasimov welcomes Jamie Mendelsohn to this episode of Entrepreneur Perspectives. In this episode they talk about the Life Settlement Market, The Crohn’s and Colitis Foundation, and the Florida Gators. Jamie Mendelsohn is the EVP...
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Emergency Items

November 27, 2017 by Admin

Emergency Items to keep within a few minutes of you at all times Spare pouch, wafer, adhesive remover and skin barrier wipe Spare outfit in the car, backpack or purse Wipes – wet wipes, non-scented Pad (big fan of Poise pads) Telephone Scissors Ziploc bag Marshmallows for emergency change situation...
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Pyoderma and an Ileostomy

November 27, 2017 by Admin

This is a difficult diagnosis, and treatment can be even more challenging; however, maintaining a good seal on my ileostomy was my greatest achievement. I suffered from active pyoderma gangrenosum for many months. I tried a variety of treatments from sub-cutaneous injections and both topical and oral tacrolimus. Pyoderma gangrenosum...
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Patient Advocacy

November 13, 2017 by Admin

When dealing with Crohn’s and Colitis, having a Patient advocate is very important and I have been blessed to not only have a twin sister to support me, but other family members, friends, and even Nurse Case managers from UHC(my health insurance company) and pharmacists that have helped me take...
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Injectable Medications

November 13, 2017 by Admin

It is important to know all of the drug therapy options that exist for Crohn’s and UC patients today. Make sure you are asking your physicians about their experience and preference with drug therapies such as: Remicade, Humira, Stelara, and Cimzia. There are also dual therapies. The above in conjunction...
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Traveling

November 10, 2017 by Admin

There have been a lot of times in my decade of living with these diseases, Crohn’s and Colitis, that I had trepidation about traveling, specifically flying, but even driving short or long distances was stressful at times. I have learned a lot over the years about the steps and actions...
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