Blog

Pyoderma and an Ileostomy

November 27, 2017 by Admin

This is a difficult diagnosis, and treatment can be even more challenging; however, maintaining a good seal on my ileostomy was my greatest achievement. I suffered from active pyoderma gangrenosum for many months. I tried a variety of treatments from sub-cutaneous injections and both topical and oral tacrolimus. Pyoderma gangrenosum...

Patient Advocacy

November 13, 2017 by Admin

When dealing with Crohn’s and Colitis, having a Patient advocate is very important and I have been blessed to not only have a twin sister to support me, but other family members, friends, and even Nurse Case managers from UHC(my health insurance company) and pharmacists that have helped me take...

Injectable Medications

November 13, 2017 by Admin

It is important to know all of the drug therapy options that exist for Crohn’s and UC patients today. Make sure you are asking your physicians about their experience and preference with drug therapies such as: Remicade, Humira, Stelara, and Cimzia. There are also dual therapies. The above in conjunction...

Traveling

November 10, 2017 by Admin

There have been a lot of times in my decade of living with these diseases, Crohn’s and Colitis, that I had trepidation about traveling, specifically flying, but even driving short or long distances was stressful at times. I have learned a lot over the years about the steps and actions...